Since Little Voice first set out to share its story, it has also set out to fundraise behind a cause extremely close to their heart…
Little Voice was very excited to meet with the Alzheimer Society of Ottawa and Renfrew County this past week to learn more about the organization’s team and how they use donations to support a variety of programs and initiatives.
“I am so honoured to work with the Alzheimer’s Society and to be able to use the Little Voice platform as a means of creating a positive impact in my community, specifically with those living with Alzheimer’s disease or a form of related dementia. I know my grandmother would be extremely proud of me if she were able to comprehend all that I am doing in her name.” – Amanda Bernardo, author of Little Voice
The Alzheimer Society Walk for Memories is a province-wide event to raise awareness and funds for Alzheimer’s care, support and education. Held annually in more than 65 communities across Ontario, this inspiring event calls on participants of all ages and abilities to help support people living with dementia.
Author Amanda and Illustrator Samantha joined hundreds of others in this year’s
2015 Walk for Memories!
“Cause I would walk 500 miles and I would walk 500 more!”
I was so honoured today to walk for my grandmother, Teresina Bernardo. She was 67 years old when she was officially diagnosed with this disease. Having lived with Alzheimer’s for over 19 years, she now finds herself in the final and more difficult stages of this disease.
Teresina Bernardo, grandmother to Author Amanda Bernardo.
The topic of Alzheimer’s has always been an emotional one in my family. It would be difficult for any family living with this disease to describe it. However, I recently read an article that truly took the words right out of my mouth; the article read: “The more I lose my mom to Alzheimer’s, the more I experience how painful it is to miss someone who is sitting right in front of you.” That’s just it, typically when we lose someone we have a chance to say goodbye, to mourn and to heal. Yet, with Alzheimer’s you don’t really get that. You say goodbye after each conversation and watch as this disease slowly strips you away from your loved one’s memories. You see someone you love disappear even though they are standing right in front of you.
Today, for the first time, I was surrounded by so many others who understood what it meant to live with Alzheimer’s disease. To see so many people together in one room, fighting for the same cause, was truly inspirational and I am truly truly honoured to have been a part of this initiative. Being part of today’s event gave me hope for a better tomorrow. It inspired me to continue fundraising, advocating and doing whatever I can to help bring awareness to this disease and the funding needed to finally find a cure!
This was my first year walking, but it most definitely won’t be my last!
– Amanda Bernardo, Author
Author Amanda & Illustrator Samantha Walking the 2015 Walk for Memories!
Today was a reminder of how Alzheimer’s disease has touched the lives of so many people. When I saw such a big community of people come together to walk, I was overjoyed with their positive spirits and hopes that someday, with much fundraising, we will find a cure!
Walking alongside Amanda today was truly wonderful. Ever since we launched Little Voice she has wanted to give back in some way or another to our community. I was 100% on board when she chose to help the Alzheimer’s Society. I knew why Amanda chose to donate to this cause, but today I was fortunate to have Amanda share with me her grandmother’s story. I am so proud to join her on this journey with Little Voice to now support this community we are so thankful to be a part of!
I look forward to walking many more kilometres in support of this amazing cause and I encourage you all to donate if possible or join us on our walk
next year!
– Samantha Clusiau-Lawlor, Illustrator
Amanda and Samantha circled the track 25 times and walked a total of 5 kilometres!
The Alzheimer Society of Ottawa and Renfrew County had over 600 walkers present, with 82 teams and … drum roll please … raised
Join thousands of Alzheimer’s advocates who are making a difference!
Did you know that women are doubly affected by Alzheimer’s disease? They outnumber men living with the disease and more often than not shoulder the responsibility of caring for a family member with it.
You know these women. They are the special women in your life – mothers, wives, sisters, grandmothers, and friends.
That’s why this January during Alzheimer Awareness Month, the Alzheimer Society is joining our colleagues across the country to launch a nationwide campaign to get Canadians talking about Alzheimer’s disease. We want women to take action, be Alzheimer’s savvy, know the warning signs and take steps to reduce their risk – not only for themselves but for those they care about. – Alzheimer Society of Canada
And I have no control over which yesterdays I keep and which ones get deleted. This disease will not be bargained with. I can’t offer it the names of the US presidents in exchange for the names of my children. I can’t give it the names of state capitals and keep the memories of my husband …My yesterdays are disappearing, and my tomorrows are uncertain, so what do I live for? I live for each day. I live in the moment. Some tomorrow soon, I’ll forget that I stood before you and gave this speech. But just because I’ll forget it some tomorrow doesn’t mean that I didn’t live every second of it today. I will forget today, but that doesn’t mean that today doesn’t matter.
– Lisa Genova, Still Alice
Teresina Bernardo and sons Arturo (Amanda’s father) & Alessandro. Teresina is currently fighting the battle against Alzheimer’s disease.
